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Rob Marris MP, was one of a group of people celebrating Brain Tumour Awareness Month at the Speaker’s House on Wednesday 15th March 2017. 

The event was held by Brain Tumour Research to mark the month of awareness and the charity’s Wear a Hat Day which takes place on Friday 31st March. The event provided a platform for guests to talk to MPs about how they can help boost research into this deadly disease. Famous names also at the event, hosted by John Bercow MP, included Debbie McGee who lost her husband Paul Daniels to a brain tumour.

Rob Marris has been a campaigner within Parliament, calling for greater awareness amongst the public of brain tumours and increased funding into research for a cure. There is currently a huge unmet need for brain tumour patients, with treatments not able to improve survival or quality of life in ways other cancer treatments can.

Brain tumours kill more children and adults under the age of 40 than any other cancer, yet just 1% of the national spend on cancer research has been allocated to this devastating disease. On top of this, incidence has risen by 19% between 2002 and 2014 even without including the thousands of secondary brain tumours diagnosed every year. Less than 20% of brain tumour patients survive beyond five years of their diagnosis – compared with 86% for breast cancer and 51% for leukaemia.

Rob Marris met, patients, carers, scientists and clinicians and heard about the challenges facing both those living with a brain tumour and those trying to secure much needed funding for research into cures.

Rob Marris said: “It is essential that the UK leads the way in investing in research into brain tumours. Wolverhampton hosts one of these research hubs at the University of Wolverhampton, Professor John Darling and Professor Tracy Warr do great work in a highly specialised field.”

“In Parliament I have continued to ask the Government to scale up specific research funding, currently it is underfunded and there is a skills gap which means it will be difficult in the future to meet research demands.”

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Brain Tumour Awareness Month

Rob Marris MP, was one of a group of people celebrating Brain Tumour Awareness Month at the Speaker’s House on Wednesday 15th March 2017. 

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Beanstalk is a fantastic national charity that provides one-to-one literacy support to children who struggle with their reading ability and confidence.

Beanstalk’s service is simple yet highly effective. They recruit, train and support volunteers to provide consistent, one-to-one literacy support to primary school children who need help. Trained reading helpers give them the support they need to improve their reading ability and confidence.

It is allied to the National Literacy Trust.  It has over 100 staff and almost 3,100 volunteers who carry out our work across England.

If you would like more information about the charity Click Here. There you can find out how you can volunteer or support the charity.

Beanstalk - Read,grow,succeed

Beanstalk is a fantastic national charity that provides one-to-one literacy support to children who struggle with their reading ability and confidence.

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Rob Marris MP joined leading disability charity Leonard Cheshire in Parliament to back their calls for an end to flying 15 minute homecare visits.

Research by the organisation has revealed that at least 33,305 people in England received 15-minute care visits in 2015/16. Of these, 16,311 received them in areas where councils admit to still using ‘flying’ visits for personal care to support people with intimate needs such as washing, dressing and eating.

Rob Marris MP said: “None of us would want our family and friends to receive personal care visits as short as 15 minutes, so we should not accept this happening across the country to anyone else.

“I am pleased to join Leonard Cheshire in calling for an end to these undignified and unsafe ‘flying’ care visits. The government needs to restore and empower our social care services, not deny them the time to care because of funding cuts.”

Short care visits continue despite statutory guidance accompanying the Care Act 2014, which came into force in April 2015, stating that:

‘Short home-care visits of 15 minutes or less are not appropriate for people who need support with intimate care needs’.

The National Institute for Clinical Excellence (NICE) also advises that carers must spend a minimum of 30 minutes during visits to help keep people well.

Neil Heslop, Leonard Cheshire Disability’s Chief Executive added: “These ‘flying’ care visits are completely unacceptable, forcing disabled people to choose between eating or going to the loo, depriving them of their dignity.

These visits are a symptom of a wider issue surrounding social care funding. To ensure we can sustainably fund social care for everyone who needs it in future, a cross-party commission on the future of health and social care is vital. We are calling on the government to set this up without delay.”

Over 10,000 people have written to the Care Minister, David Mowat, in support of the campaign, urging him to take action to ensure social care is properly funded and put an end to these rushed care visits.

15 minute home care visits, no dignity and no time to care

Rob Marris MP joined leading disability charity Leonard Cheshire in Parliament to back their calls for an end to flying 15 minute homecare visits.

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